Tag Archives: updates

9 months!

yesterday marked 9 months since my brain surgery! in some ways it feels like a very distant memory; in others, it seems like it was yesterday.

overall, i am doing great. i am functioning more or less normally in most ways in my life, to the point that anyone who sees me out and about in the world would not ever know i had brain surgery unless i told them.

i am still struggling with a few “invisible” deficits (my throat is still a hot mess, between my frozen left vocal cord and my permanently swollen right tonsil – i sound like an old man coughing and clearing my throat all the time as these issues still make swallowing and breathing challenging at times) but they are minor in the grand scheme of things.

my eyesight has stabilized for the most part; i only have double vision first thing in the morning or really late at night when i’m really tired, on rare occasion. i still haven’t made it in to the eye doctor but hopefully a new prescription will resolve some of that.

my head – skull, really – still feels weird. waking up each morning is a daily reminder of the trauma i went through, as my head and neck always hurt for a little while – likely from the pressure having built up, from being flat all night – but once i’m up and about it goes away. from what i’m reading from others who’ve had this surgery, it really doesn’t ever get better. my head is going to feel strange for the rest of my life. i have accepted this and i try to not let it bother me but some days it’s hard to not dwell on it. it can be alarming.

my voice comes and goes. some days it is better than others. people still tell me it sounds like i’m getting closer and closer to my regular voice but to me it still sounds so strange and not me at all. the thing that bothers me most is not being able to speak loudly or yell. folks still have a hard time hearing me sometimes.

i would say my work capacity is at about maybe 2/3rds to 3/4ths of what i was able to do pre-surgery, with some limitations. (i think i learned last week that 10 days is maybe too long for overnight sitting without getting some kind of break. i managed, but i also got sick in the middle of the sit, likely due to being rundown from lack of sleep and just overdoing it.)

i might not ever get back that last 1/4 to 1/3 of my capacity, but that’s ok. i just have to adjust and be careful about taking care of myself. it’s a very strange realization to have that you might not quite be the same person you were before a major surgery, but i guess it’s a realization that many people have over the course of their lifetimes, about various kinds of surgery. and really, i’ve bounced back pretty well and i have a lot to be grateful for.

speaking of which, i’m in the middle of sending out handmade thank you cards to everyone who helped me through surgery in any way. it is a very long and laborious process, as my spreadsheet has 350+ people on it to thank! and there are a lot of folks i don’t have mailing addresses for. so if you are reading this and you don’t think i have your snail mail address, please do send it along. i will eventually ask you for it when i get to your name on my list but free free to volunteer it.

not much really to report otherwise. it’s starting to be the dead of summer here, mid july. we’ve been spared the extreme heat/humidity combo through most of june thanks to daily rain but it looks like it’s setting in now, and it is more draining to me than it ever was before. i’m grateful i only walk dogs half the day now because i don’t think i could handle much more. i literally have to come home and lie down in the AC every afternoon when i’m done to recuperate… and that’s from only 4 hours of walking.

i did manage to schedule some vacation for myself in august around my birthday though, and i’m greatly looking forward to it. i haven’t gotten out of town since december 2019 so vacation is long overdue. and great to have 10 days off work in august which is usually the most miserable month of the year.

so that’s it, that’s my update. hope everyone’s having a good summer!